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The purpose of this blog entry is clear: Please share this message with all your friends and family members. But before you do, watch the short testimony from Laurel and read the compelling words written by Christopher Cairns of CFS Patient Advocate.
Here’s an excerpt from his latest blog entry called “What the boys want, dad, is clarity”
Imagine a patient who cannot stand, who has extreme fatigue and must live a horizontal life. Imagine a person who is functionally blind from light sensitivity and eye muscle fatigue and wears a blinder 24/7. Imagine how this blindness might further limit this person’s ability to move. Imagine this person with sound sensitivity so bad that they have to wear earplugs or sound blocking earguards. Imagine a person whose skin is sore and sensitive to the touch. Imagine a person who cannot focus their thoughts, has short term memory deficit, or can’t speak clearly because of neurological deficits (“brain fog”). Imagine a person who has seizures, spasms and twitches. Imagine a person who has lost their sense of smell – or has hypersensitivity to smells. Imagine a person who cannot speak, or cannot speak above a whisper. Imagine a person with a feeding tube, IV medication, and oxygen. Imagine living in a world where things coming in and things going out don’t happen. Take a good look. This is ME/CFS at the core. My friends in the UK call it ME. It is worth noting that all other ME/CFS patients are on a continuum, shifting whimsically up or down the scale over the years.
Sharing this takes you less than ten seconds, but it will mean the world to so many.
Thanks.
For mange år siden ble psykiatriske pasienter lobotomert og gitt insulinsjokk som behandling for deres symptomer. I dag er alle vel vitende om at dette var en ALVORLIG feilbehandling og et stort overgrep mot disse menneskene som ble utsatt for dette. I like stor grad blir de fleste med en ME-diagnose utsatt for overgrep og feilbehandling av våre norske myndigheter og av alle de i behandlingsapparatet som fremdeles påstår at dette er en psykisk sykdom.
La oss ikke være nok en pasientgruppe som opplever overgrep og fordømmelse fordi staten og behandlere ikke vil innrømme at de i mange år har tatt feil. ME er ingen psykisk sykdom!